This video explains some of the reasons why everyone with Myalgic Encephalomyelitis needs a computer (with access to the internet).
These comments would all no doubt apply equally to people with comparable illnesses to M.E., both politically and medically.
a. Medically: Where a large percentage of patients are completely (or for significant periods of time) housebound and/or bedbound or otherwise limited with communication. (For example; if they are unable to have visitors, use the phone or speak: often/for very long at a time/without significant relapse afterward/without great difficulty or at all; as are many people with M.E.)
b. Politically: Where the vast majority of information produced about the illness is so inaccurate and misleading as to amount to nothing less than propaganda; thanks to the involvement of vested interest groups, including the government (and with full support from government and the media -- with some notable exceptions in the case of the media).
Myalgic Encephalomyelitis is not the same thing as 'CFS' (or ME/CFS, CFS/ME, ME-CFS, CFIDS or Myalgic 'Encephalopathy').
The bogus disease category of 'CFS' has undoubtedly been used to impose a false psychiatric paradigm of M.E. by allying it with various psychiatric fatigue states and various unrelated fatigue syndromes for the benefit of insurance companies and various other organisations and corporations which have a vested financial interest in how these patients are treated, including the government.
This pretence of ignorance about M.E. -- and that M.E. and CFS are the same -- (particularly by government) has had devastating consequences for people with M.E. Many people with M.E. are subjected to medical abuse (and abuse by misinformed family members), denied even basic medical care and may also be subjected to inappropriate 'treatments' which are at best useless and at worst extremely harmful (people have been left wheelchair or bedbound afterward for years or DECADES, or in cardiac care units) or even fatal for people with M.E. These inappropriate interventions are the actual reason that so many people with M.E. are so severely affected in the first place.
The decades of systemic abuse and neglect of the million or more children and adults with M.E. worldwide has to stop. It is grossly unscientific, unethical and inhuman.
While there IS a lot of good information available about M.E. offline, it is very often only online that people with M.E. (and the parents of children with M.E.) learn of its existence.
For so many people with M.E., the internet is not just a vital source of legitimate political and medical information about their illness; but it often provides their only source of support as well, and/or even their primary (or virtually only) method of communication.
(If I were well enough, I would start a charity aimed at getting second-hand computers to M.E. sufferers who cannot afford them; particularly the housebound and those who cannot communicate for very long any other way.)
For more information on all aspects of M.E. see:
http://www.ahummingbirdsguide.com/wha...
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